Top Posts of 2017: What You Were Looking For

I haven’t done this before, but it’s excessively interesting! Here are the seven most popular posts from 2017.

What Works-

The most popular post of 2017 was What Works: A Round Up. I shared my seven top tips for living well with Fibromyalgia and seven fibro bloggers shared some tips of what works for them.

They talk symptom relief, diet, rest and daily rituals to manage Fibromyalgia.


Pregnancy and Fibro

The second most popular post was the one where I announced my book Fibro Mama Pregnancy and Fibromyalgia. It was such a dream come true to write and publish a book and to share this hard earned knowledge.

 


Low Dose Naltrexone (LDN)The third was where I shared my research and experience with low dose naltrexone (LDN). It has been such a ride since starting LDN last April. I could never have published my Fibro Mama book or written my Melissa vs Fibromyalgia book (out January 29th). LDN isn’t a stand alone treatment, but it has helped me so much.

 

 


fibro friendly links

I’m a big fan of yoga. I use it in all its forms to manage the symptoms of Fibromyalgia. In this post I shared My Pain/Fatigue Friendly Yoga Links from bed yoga for spoonies, to yoga for neck pain and full sun salutations.

 

 

 

 


A Tricky Parenting SecretI shared A Tricky Parenting Secret after I’d been despairing about how to help my kids have a nice time despite pain and fatigue. It really doesn’t take as much as you’d think.

 

 

 

 


A Confession on Pacing and Boundaries was also popular, it’s a really tricky balance when you have children. It sometimes feels like the biggest battle isn’t to define your boundaries, but to protect them.


I wrote my Pregnancy Diaries when I was pregnant in 2016, last year I edited and posted fibro mama weeks 31-33them. Fibro Mama Pregnancy Diaries: Weeks 31-33 was rather popular. Looking back, this was the calm before the storm.


So these were my seven most popular posts of 2017. I’d love to hear the topics you have enjoyed the most and would like me to write more about in 2018.

If you like my posts then please feel free to sign up to my newsletter. You’ll also receive my free Microcourse – Arm Yourself with Knowledge (about pregnancy, nursing and parenting with Fibromyalgia)

 

2017 – Melissa vs Fibromyalgia in Review

What a year! My second baby has been in this first year, learning to roll, crawl and, now, trying to walk. My first has been in this third year, learning and growing so fast.

I’m in a period of healing, that phase where you feel like things could get better. The low dose naltrexone (LDN) seems to be helping with stamina, pain and fatigue. I’m not sure how far it will go, but I am grateful for a renewed sense of hope.

Despite extended sleep deprivation due to the baby with reflux, I have coped excessively well. I’ve also had a separate health issue that drained on me for more than two months and I managed to cope and keep going forward despite it.

New Medicine

I began low dose naltrexone in April. After nine months and many dose varieties, I am holding at 4mg with improved stamina, slightly reduced fatigue and a slight difference in pain levels. I look forward to further improvements.

Supplements

MSM supplement has been a useful addition to my arsenal. It is supposed to help with muscle, tendon and ligament pain in addition to healing the gut.

Magnesium oil right before bed around my neck and shoulders. I’ve taken magnesium for a long time, and it’s nice to not have to take it in tablet form.

Moringa powder provides 18/20 amino acids in addition to being a good source of iron and other nutrients. I am not very good at remembering to take it as it’s best taken with juice or in a smoothie – I dislike juice and I usually share smoothies within my three year old.

Exercise

After dealing with symphisis pubis disorder for several months after having Wyatt last December, I am pleased to be walking 20-30 minutes a few times a week (it’s a time thing with two small children, I’d love to do it more). I’m also back to my sun salutation sequence whenever I can.

Work

I’m looking at going back to work and am trying to find something that won’t demand too many hours, too much energy. I am looking forward to it.

A life goal
I accomplished a life goal when I published my book Fibro Mama: Pregnancy and Fibromyalgia. Since I was a young teenager, I have loved writing. When I wrote my life goal list up in my early twenties (doesn’t everyone do this, write it up physically?), publishing a book was on there. As I researched and shared my journey with pregnancy for the past four years, my mission became to help even one person not feel so alone in this vulnerable time. Now that I’ve felt some concrete results of the past several of real work on my health – I’ve compiled a large list of things I do to manage my illness, and I will be writing about this in a book due out early next year, Melissa vs Fibromyalgia: My Journey Fighting Chronic Pain, Chronic Fatigue & Insomnia 

 

It’s very exciting, I’m so glad to be able to share this journey with you.

I hope you have a restful and lovely Christmas holiday period and a happy New Year.

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Some of my links are affiliate links, I receive compensation at no extra cost to you if you purchase using these links. I never promote anything I don’t 100% support myself.

Low Dose Naltrexone (LDN), Fibromyalgia & Me

Low Dose Naltrexone (LDN)Low dose naltrexone came on my radar last year and after consuming all of the research and anecdotal evidence about its impact on Fibromyalgia, I earmarked it for my major experiment post-baby (I had baby W last December).

Donna Gregory Birch, a well-known Fibromyalgia writer who explains how LDN works: “in low doses (typically 1-4.5 mg), naltrexone enhances the body’s immune system by boosting the production of endorphins, which in turn promotes healing and lessens inflammation.

Research has been showing promising results. Dr Jared Younger started with a tiny study and found positive results, approximately 65% of patients experienced clinically significant results. He’s doing a bigger study this year.

As a member of an active group about what works for Fibromyalgia and two groups about low dose naltrexone on Facebook, I have seen many testimonies from people with Fibromyalgia experiencing changes due to LDN ranging from mildly beneficial to miraculous. There are also those for whom it does not work or they do not try it for long enough – this is not a quick fix for most.

Further information on how LDN works is well explained in this article, which includes many links to research.

If I could experience a 30% (this is considered clinically significant and therefore as success) decrease in pain and fatigue, my life would change! I could be a mama, a wife, do my work and have some form of a life outside that and not pay with such significant levels of pain, fatigue and other side effects of the Fibromyalgia.

I can only share research and what works or doesn’t work for me. We are all unique and react differently. If you’re interested in LDN then read the research/information and then discuss it with your doctor.

My updates

Low Dose Naltrexone: An Experiment
Low Dose Naltrexone: Update 16 Weeks

Now

I have been reluctant to post this update, I was waiting for something solidly quantifiable but in lieu of that I’ll give you my anecdotal evidence that it is working.

Around 8 months ago I began taking low dose naltrexone and have slowly titrated up to a dose of 4 milligrams. It took me about six months to get to 4 milligrams as previously my body couldn’t cope with that level, I experienced vivid dreams and flare ups of ulcers and cold sores each time I tried to titrate up too fast. I may try 4.5 milligrams later on.

 

For now the effects that I have noticed are:

slightly more stamina
slightly better sleep
slightly less fatigue and
slightly less neck pain – from an average (which changes over a day as well as the week) of 4-7/10 down to about 3-5/10

Anyone who has been following my blog for a while would know that my neck is the area I struggle with the most. With that a little more in check, the fatigue is a close second.

I don’t think my functionality has increased however the quality of my life while performing all that I do has increased. When I do overdo it or have a bad night’s sleep the pain will increase. The heatpack is still my best friend, the computer is still my neck’s nemesis and I can’t hold it for too long in one position – but it’s better than before.

I still have hope that as we edge toward the one year anniversary that I’ll experience more miraculous effects. For now it is definitely worth the $30 a month I pay for the perscription.

This combined with meditation and gentle exercise, paying attention to what I eat and trying to limit stress have been the best things I could do. I hope that when I start working I will be able to maintain half-time hours and not return too much closer to the previous pain levels.

I’d love to hear your experiences with LDN. I’ll write an update when we get closer to a year.

Low Dose Naltrexone: Update 16 Weeks

My major experiment post- baby is Low Dose Naltrexone (LDN), you can read about the beginning of my experiment here.

Varying information will agree on anything between 8 weeks and one year to experience the full effects of LDN. And a dose of between 3 and 4.5mg depending on the illness.

At 15 weeks into the experiment, after six months of sleep deprivation from the baby on a grand scale (read: wake ups of between 2-10 times a night), I had a flare up. My neck was so sore I was extremely nauseas and had a severe headache for days. The doctor I saw told me it was my C3 and C4 vertebra that were causing me trouble. The pain was actually spasms. He suggested a muscle relaxant and slow release Brufen.

Feeling like I was taking a lot of pills, I skipped a dose of LDN for a night. A lot of people note needing to skip a night occasionally to clear the receptors as a way to increase effectiveness. There were no changes noted.

Two nights later I went on my first date with my husband since the baby. We had a glass of wine. I decided I’d better not take the LDN (full dose Naltrexone is for alcohol and drug withdrawal, it can cause vomiting when mixed).

The next day I felt like I’d been hit by a truck. The fatigue sky rocketed. I was at 6-7/10 levels, hardly functioning, needed two rests and craved sugar like mad.

Taking my 3mg dose as usual that night I went to sleep hoping to feel better when I woke.

I did feel a bit better! The fatigue was about 3/10 and the filmy fog on my brain had descended a level or two. My neck came down a point, that could be related or not.

This is proof to me that it’s making a difference. At 3-3.5mg LDN is helping my fatigue.

I patiently continue for my maximum benefit. One woman in an LDN group told me of feeling progressively better over a year to approximately 90% function at one year! It gives me such hope. So I shall continue on for my one year experiment.

Low Dose Naltrexone: An Experiment

There are three little letters that are causing a craze in the world of Fibromyalgia at the moment – LDN (low dose naltrexone). This is the last (for now) major experiment I can engage in.

Research has been showing promising results. Dr Jared Younger started with a tiny study and found positive results, approximately 65% of patients included experienced clinically significant results. He’s doing a bigger study this year.

How LDN works is well explained in this article, which includes many links to research.

It is meant to help with so many issues, including Fibromyalgia, chronic fatigue syndrome, gastrointestinal troubles and more.

If I could experience a 30% (this is considered clinically significant and therefore as success) decrease in pain and fatigue, my life would change! I could be a mama, a wife, do my work and have some form of a life outside that and not pay with such significant levels of pain, fatigue and other side effects of the Fibromyalgia.

I can only share research and what works or doesn’t work for me. We are all unique and react differently. If you’re interested in LDN then read the research/information and then discuss it with your doctor.

Key things I learnt:

  • It works best for me when taken at 9 (not earlier).
  • My main side effect was vivid, crazy dreams.
  • Titrating up 0.5mg at a time with four day gaps between increases, until 2.5mg when it was beneficial to wait a week or more.

I’ll update on this experiment when I’m closer to the four month mark – this is when most people I’ve read about in the LDN groups on Facebook find it shows the best effects.

Have you tried LDN? Any success?