Melissa vs Fibromyalgia: As Close to a Roadmap as I can Give You

Melissa vs Fibromyalgia book coverMy book Melissa vs Fibromyalgia: My journey Fighting Chronic Pain, Chronic Fatigue and Insomnia is available for preorder on Amazon now! It’s release date is 29 January 2018.

This is what I wish the doctor had pressed into my hands when I was given, at last, a reason (or as close as I can get) for the pain, fatigue and insomnia I had been fighting for nearly 10 years already.

Who wouldn’t want a road map that lays out the specific steps to take to reduce pain, increase energy and generally limit the misery of not knowing?

I can’t provide a finely detailed road map tailored to you, but I have done the next best thing – I wrote up my experience combined with the research.

What’s in it?

I share the key things that help me and what the research says about these things so that you have somewhere to start. I have gone through many books, articles and pieces of research. I’ve done numerous experiments on myself – from figuring out my ideal walk length to trying low dose naltrexone

Nothing I’ve tried has severe side effects. I do share my experience with amitriptyline, an older tricyclic antidepressant that can help with sedation (to fall asleep), pain and headaches. This has several potential side effects, mostly mitigated for me by the low dosage, that means the cost/benefit ratio doesn’t work for many. The chances of it working, of the effects not wearing off and potential side effects make it a tricky option. I’ve always said I am lucky that the locum GP – who I saw once, saw my history of insomnia and put me on it – gave it to me prior to my being able to research, because I’d probably not have tried it.

Other than the low dose naltrexone and amitriptyline, the things I do are generally low in the side effect profile and self-controlled.

Self-efficacy is vital in managing this illness. Every day we have to do the work. We can’t hand this off and expect to be well.

Free Bonus

As a special free bonus for those who purchase my book before 11 February 2018, you will get FREE access to my new eCourse You vs Fibromyalgia: Arm Yourself with Knowledge. This has five lessons and goes through what Fibromyalgia is, my six tips, the quick list of the nine things that work for me, why I consider sleep as king and a sneak peak at pregnancy, nursing and parenting with Fibromyalgia (this is the subject of it’s own full eCourse).

How to access it

Email hello @ melissavsfibromyalgia . com with the proof of purchase (a screenshot of of your Amazon orders page with Melissa vs Fibromyalgia: My Journey Fighting Chronic Pain, Chronic Fatigue and Insomnia in there) and I will respond with the password and link to the course. The course will be released the day the book is.

Are you ready to get started on the next phase of your fight against fibromyalgia?

2017 – Melissa vs Fibromyalgia in Review

What a year! My second baby has been in this first year, learning to roll, crawl and, now, trying to walk. My first has been in this third year, learning and growing so fast.

I’m in a period of healing, that phase where you feel like things could get better. The low dose naltrexone (LDN) seems to be helping with stamina, pain and fatigue. I’m not sure how far it will go, but I am grateful for a renewed sense of hope.

Despite extended sleep deprivation due to the baby with reflux, I have coped excessively well. I’ve also had a separate health issue that drained on me for more than two months and I managed to cope and keep going forward despite it.

New Medicine

I began low dose naltrexone in April. After nine months and many dose varieties, I am holding at 4mg with improved stamina, slightly reduced fatigue and a slight difference in pain levels. I look forward to further improvements.

Supplements

MSM supplement has been a useful addition to my arsenal. It is supposed to help with muscle, tendon and ligament pain in addition to healing the gut.

Magnesium oil right before bed around my neck and shoulders. I’ve taken magnesium for a long time, and it’s nice to not have to take it in tablet form.

Moringa powder provides 18/20 amino acids in addition to being a good source of iron and other nutrients. I am not very good at remembering to take it as it’s best taken with juice or in a smoothie – I dislike juice and I usually share smoothies within my three year old.

Exercise

After dealing with symphisis pubis disorder for several months after having Wyatt last December, I am pleased to be walking 20-30 minutes a few times a week (it’s a time thing with two small children, I’d love to do it more). I’m also back to my sun salutation sequence whenever I can.

Work

I’m looking at going back to work and am trying to find something that won’t demand too many hours, too much energy. I am looking forward to it.

A life goal
I accomplished a life goal when I published my book Fibro Mama: Pregnancy and Fibromyalgia. Since I was a young teenager, I have loved writing. When I wrote my life goal list up in my early twenties (doesn’t everyone do this, write it up physically?), publishing a book was on there. As I researched and shared my journey with pregnancy for the past four years, my mission became to help even one person not feel so alone in this vulnerable time. Now that I’ve felt some concrete results of the past several of real work on my health – I’ve compiled a large list of things I do to manage my illness, and I will be writing about this in a book due out early next year, Melissa vs Fibromyalgia: My Journey Fighting Chronic Pain, Chronic Fatigue & Insomnia 

 

It’s very exciting, I’m so glad to be able to share this journey with you.

I hope you have a restful and lovely Christmas holiday period and a happy New Year.

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Some of my links are affiliate links, I receive compensation at no extra cost to you if you purchase using these links. I never promote anything I don’t 100% support myself.

Pregnancy & Fibromyalgia Survey, Book & Page

Fibro Mama Tools for Managing Early PregnancyAfter being disappointed at the lack of information about pregnancy with Fibromyalgia when I had Nu four years ago, I set about writing up my experiences and researching as new information became available.

On my Fibro Mama Pregnancy Diaries page I include my journals from my second pregnancy last year, which I edited and posted over this past year.

Now I’m writing a book!
On my new Fibro Mama Pregnancy & Fibromyalgia page I include the links to the ebook I’m writing as I publish the posts. When it is complete (and edited) it will be available for purchase, with extra content.
For now, could I ask you a favour?
Would you fill in a survey so I can add to the research available (limited) and my experience (two pregnancies makes me an expert in my experience not collective experience)? Screenshot_20171117-092641
If you’re interested in following my progress in writing the book, or supporting me by purchasing it when I’m finished, please feel free to follow this blog and tell anyone who could benefit by this information.
Please feel free to comment about anything further you’re curious about and I’ll do my best to research it.

New Name, Same Mission

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I have spent a long time thinking over the name of this blog. I don’t claim ownership over the Fibromyalgia. It is not mine. I will never say “my” before Fibromyalgia. However, when you name a blog, people need to know what it is about in order to find it.

So here it is, Melissa vs Fibromyalgia. This encapsulates my mission perfectly. I am fighting Fibromyalgia. Not just for myself, but for my two beautiful, busy boys and the love of my life (Husband).

This site is the compilation of my learning from my own journey and from my research.

Here’s a post that I wrote about: The Whole of Life Change Anniversary

Here’s where I write about What it’s Really Like to Live With Fibromyalgia

Here’s a recent post of what other bloggers and I have found to help with fighting Fibromyalgia: What Works: A Roundup

I am trying to come to terms with the idea that this could be a progressive illness. I cannot give up that nugget of hope that I will find some measure of relief one day.

Welcome to the continuation of my journey.