8 tips to cope with children, symphysis pubis disorder and fibromyalgia

How to Cope with Two Tiny Children, Symphysis Pubis Disorder and Fibromyalgia

As my third pregnancy progresses and the symphysis pubis disorder reduces my mobility and increases my pain, it is getting more difficult to manage everything else. Namely the two tiny children and the fibromyalgia.

In case other fibro parents are struggling, I thought I’d share how I’m managing. This is not to say I’m doing amazingly, I get discouraged and disappointed with my limitations. But I acknowledge I am doing my best thanks to several things.

8 tips to cope with children, symphysis pubis disorder and fibromyalgia

  1. I wholly believe I am coping this well this time due to sleep – or the low dose naltrexone helping me sleep. It may be disrupted by pain and pee, but it is more restorative than before. Sleep is king.
  2. Meditation– I cannot nap but the fatigue has been creeping higher so I am eternally grateful for guided meditation to help me achieve 30 or so minutes of deep rest to keep me going.
  3. Routine – my boys and I are creatures of routine. We have the same morning and evening framework daily and set plans during the week. They expect the routine and I can provide it even when greatly diminished.
  4. Flexibility – within this routine there is flexibility. For example, some evenings when husband is at work and I’m exhausted we will do a fish and chip, movie evening. Some nights we skip the shower.
  5. Time saving – I bunch jobs. I make their lunches at the same time. I throw dinner in the pressure cooker or slow cooker in a gap in the day. I shower the boys together (Wyatt adores showering with big brother). We sing a family song together at bedtime and they are going to bed around the same time.
  6. Help – we have kept them in their routine from when I was able to work. Noah does kindy two mornings and they both go to their carer’s for two school hour days. This enables me to get to appointments, cleaning, cooking and resting, which I was not managing while at work.
  7. Easy activities – I keep a snap lock bag with crayons and a scrapbook to get out on a whim. There’s a tub of outdoor chalk in the lean-to outside. A box of play dough and supplies lives in the cupboard. We have a trampoline and small slide structure for backyard fun. I keep a rotation of toys going in the lounge so they don’t get stale, the boys both love blocks. Indoor parks are great in wet weather too. And books, they both have their favourites. Don’t underestimate balloons! My boys will play balloon for ages. (Actually I can and will write a whole post on this, look out for it!)
  8. Television – at that time of day when the kids are tired and I need a break, we will sit and snuggle and watch the tele. No mama guilt y’all.

Do you have any other tips?


If you want to learn more:

Pregnancy and Fibromyalgia

Pregnancy with Fibromyalgia free miro coursesee the video for the free micro course here, it has the link for the free workbook too!

You vs Fibromyalgia

Free eCourse sign up you vs fibromyalgiafree micro course sign up here.

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how i'm moving while pregnant with fibromyalgia despite symphysis pubis disorder

How I’m Moving While Pregnant with Fibromyalgia Despite Symphysis Pubis Disorder

Movement, or gentle exercise, is an often recommended intervention for Fibromyalgia. If you’ve followed my writing for any amount of time you might have picked up on my love of yoga.

A lot of yoga is off the table while I can’t move my legs wider than hip width apart. Most exercise is off the table due to the level of pain. Why can’t I move my legs wider than hip width and why are my pain levels so high?

how i'm moving while pregnant with fibromyalgia despite symphysis pubis disorder

Symphysis Pubis Disorder

Symphysis Pubis Disorder, or pelvic girdle pain, is a condition where the pelvis relaxes too far causing pain ranging from mild to severe. There’s a lot more detail in this article.

This article goes into good detail about symptoms, how you can help yourself and even how it may affect labour.

During my second pregnancy I endured severe pain in the third trimester which went undiagnosed until a couple of days postpartum. It usually clears up by 12 weeks postpartum, but it took me nine months for the pain to reduce. It can take up to two years.

For this pregnancy, when the pain began at week 10, I knew what to do:

  • Kept my legs hip width apart with movement
  • Rested (paced)
  • Applied my heat pack
  • Rub my essential oil pain cream (this is something you need to research- see my post on essential oils here)
  • Did pelvic tilts
  • Used the pelvic support band when needed
  • Saw my physio who gave me an isometric strengthening move (a squat with legs at hip width that focuses on engaging belly, glutes, legs and pelvic floor) to do multiple times a day
  • Asked my midwife for referral to the hospital for specialist input

For my Pregnancy with Fibromyalgia Diaries 2018 see my YouTube channel. I discuss the SPD and more.

Here’s my video on how I’m moving despite the SPD:

More pregnancy posts:

Early Pregnancy Symptoms and Fibromyalgia (2018 Edition)

Navigating Pain Relief in Pregnancy with Fibromyalgia

Fibro Parents Survey Results & Big News about Pregnancy and Fibromyalgia Book

Necessary Baby Items for a Fibro Parent

Meanwhile, here are the stretches I’ve been managing:

Please do Google these for proper form and if you have never done yoga before, ask a practitioner to teach you the right way to do the poses.

  • Pelvic tilts/cat and cow pose
  • Puppy pose
  • Child’s pose
  • Mountain pose
  • Forward bend
  • Neck stretches
  • Shoulder stretches
  • Down dog

I haven’t done much other exercise as the incidental walking with work and the children is my maximum capacity physically for now.

Hopefully something here helps you but please do clear everything with a physical therapist as you need to be sure you’re moving correctly so as to not cause extra pain or damage.

If you want to learn even more information about pain relief during pregnancy, then check out my 15-page printable PDF Pregnancy with Fibromyalgia Micro Course Workbook. It goes through the existing information about pain relief during pregnancy,Pain Managementmicro course my experiences, a list of natural pain relief options, a list of further reading, a template to make your own pain relief plan (pregnancy edition) with space for notes and the brand new Advanced Pain Relief sheet with links to research about medicine use in pregnancy. I have gathered the information and created these printables to make it easier for you to make the best decisions for yourself- it took me years to get it all together.

Don’t forget to come along and join the Pregnancy and Fibromyalgia Facebook group where we chat trying to conceive, pregnancy, nursing etc.