how to manage brain fog and fibromyalgia. what brain fog is, how it manifests and how we can fight it

How to Manage Brain Fog and Fibromyalgia

There’s a pernicious symptom of living with Fibromyalgia that can fall into the background of the twin peaks of pain and fatigue. Something that affects our everyday lives and we may not even realise it is a thing.

how to manage brain fog and fibromyalgia. what brain fog is, how it manifests and how we can fight it

Brain fog, fibro fog, or cognitive dysfunction (a very unattractive term, but there it is.)

It can strike during any conversation, any task, any time.

I can’t do confrontations because the stress causes me to forget how to stand up for myself. All the words or well-articulated statements I’d have written down become buried in fog when I try to access them in the moment. Even subjects I’m well researched on become minefields when reaching through my memory for the information. Which is part of why I write everything down.

There’s been a thousand conversations where I’m reaching for simple words that blew away a moment before I want them. There have been even more times when I say one thing when I mean another.  Sometimes I know I’ve done it, but often I don’t. Occasionally I’ll realise later.

As someone who loves words and writing it’s more than a little upsetting.

Brain fog was thought to be another thing that is all in our heads, however, “a 2015 study in Arthritis Care and Research found that fibro fog is a real issue. In a study of 60 individuals – 30 with fibromyalgia and 30 without fibromyalgia – researchers found various impairments of attention and memory in fibromyalgia patients when compared with healthy controls. What remains unclear is what is causing the cognitive challenges.” Reference: Fibro Fog: Sleep, brain dysfunction likely culprits for cognitive difficulties associated with fibromyalgia on Arthritis Foundation accessed here

It is thought as many as 50% of Fibromyalgia patients struggle with it, perhaps more.

Brain fog has been theorized to be caused by poor sleep, the nervous system being off-kilter, stress and anxiety, and pain severity. Though, they really don’t know the cause yet.

Here’s the ways fibro fog can manifest:

  • Clumsiness/loss of spatial awareness
  • Losing words
  • Mixing up words
  • Forgetting things
  • Confusion (I’ve never experienced this but see how it could occur)
  • Overwhelm (too many competing sensory inputs)
  • Becoming easily distracted

Here’s some things that help minimise fibro fog:

  • Get the best sleep you can get (something I have found and is supported by the literature – sleep really is king to managing Fibromyalgia symptoms)
  • Pace activity and rest
  • Manage pain
  • Give yourself time and understanding

These are not small things for us to do. I spend a lot of time working on good sleep and managing pain. However it’s far better to what it was when I was at my worst. I go through all of these things in my course You vs Fibromyalgia and help you make plans to manage pain, sleep and pacing, so do come and join us now (the early bird offer disappears on 18th August 2018) if you would like help in these areas.

Here’s some ways to combat fibro fog and the effects:

  • Lists, write it all down – even before I was diagnosed or had any idea of why life was so much harder for me, I planned religiously and had lists upon lists.
  • Routines, automatic pilot can be useful
  • Explain it to those around you often – I often tell my family that there is nothing more dear to me than a person who mercifully adds the right word in their own head for or me or gives it to me gently.
  • Check your medicines are not the culprits – sometimes our medicines cause as many issues as they solve, it’s good to be aware of what their side effects are so we can mitigate them.

Brain fog is just one of those things that come with chronic sleep deprivation, pain and fatigue, but there are many things we can do to compensate for it.


You vs Fibromyalgia, my research and your plans.

This is an excerpt from my eCourse You vs Fibromyalgia: Helping you Fight Chronic Pain, Chronic Fatigue and Insomnia – do come along and join us to if you want to learn to fight.

 

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You vs Fibromyalgia eCourse my research your plans to fight chronic pain chronic fatigue and insomnia

You vs Fibromyalgia Equipping You to Fight

I am super excited to announce that I am running You vs Fibromyalgia: Helping You Fight Chronic Pain, Chronic Fatigue and Insomnia full eCourse!

 

You vs Fibromyalgia eCourse my research your plans to fight chronic pain chronic fatigue and insomnia

While my micro course You vs Fibromyalgia: Arm Yourself with Knowledge is a free introduction to some of the modules in the full course, it isn’t exhaustive. This course has a lot more information, so if you’re ready to dive in for more and create your own pain management plans, trial some sleep tips, learn about low dose naltrexone for fibromyalgia and more – then come and join us!

If you learn only one thing from anything I ever write, I hope it is that you can impact your quality of life. I have made a huge difference to my quality of life through research and personal trial and error. But it took a lot of time. I want to save you that time.

See below for my brief introduction video about You vs Fibromyalgia

I have just enough time to run this course before baby comes in November, so it won’t be offered again until next year.

The stats of the course aka what you get

  • Seven modules with
  • Short video lessons
  • Templates to make your own pain management plans, a sleep diary, a list for keeping track of the things you’d like to try and a form for working out how you could create some space and make the most of your life despite fibromyalgia
    information sheets
  • The workbook – with all of the lessons, information sheets, templates, heaps of extra reading with space for notes!

Between this course and my book Melissa vs Fibromyalgia: My Journey Fighting Chronic Pain, Chronic Fatigue and Insomnia (affiliate link) and my free resources pages – I am content that I have shared everything I can to help you not suffer as long as I had to. Obviously I am not a doctor and there are often more issues than just the fibromyalgia at play. A doctor and medicine definitely have their place in treatment, but I want to also share all of the things you can do yourself – today – to fight the fibromyalgia.

Yes, I am just as ecstatic to join the journey!

You vs Fibromyalgia: Helping You Fight Chronic Pain, Chronic Fatigue & Insomnia

I got a bit excited about sharing my knowledge and went ahead and began planning a full eCourse –
You vs Fibromyalgia: Helping You Fight Chronic Pain, Chronic Fatigue and Insomnia.

You vs Fibro full ecourse

It is for anyone wanting to fight chronic pain, chronic fatigue and insomnia. Most of my recommendations are self-actionable – you make choices every single day that effect your quality of life, so you have the most power to live well with Fibromyalgia.

It will have seven modules:

  1. Knowledge (knowledge is power)
  2. Pain management
  3. Sleep
  4. Meditation
  5. Yoga (or gentle exercise)
  6. Pacing and Boundaries
  7. Brain Fog

What you get:

  • Five modules
  • Four (or more) videos
  • Four templates to make your own plans for pain management, sleep and things to try
  • Four (or more) information sheets – including my list of further reading – this is from my spreadsheet of articles, research and information about Fibromyalgia/Chronic Pain/Chronic Fatigue and Insomnia over the past five years broken down by subject!
  • A lot of further reading for you to follow up areas that interest you and take your learning further
  • The workbook with all of the lessons, information sheets and templates with space for notes.

A course is a lot of work – there is a lot of information here, so I will run this course from 1 April 2018 if 10 people enroll before March 15th.

As a special offer, I will give early bird enrollments at $69 (value $125!) PLUS all early bird enrollments will receive the free bonus lesson Support.

You vs Fibro full ecourse

Learn more and enroll here (you can also see a free preview of the first lesson)

I hope you will join us in this journey.

 


If you’re not ready for a full eCourse, what else can you do?

you v fibro e courseTry my free micro course You vs Fibromyalgia: Arm Yourself with Knowledge this is an introduction to the information available in five lessons.

 

 

sign up to newsletterSign up to my free resources page which has free PDF printable reports, templates, micro courses and more.

 

Melissa vs Fibromyalgia: As Close to a Roadmap as I can Give You

My book Melissa vs Fibromyalgia: My journey Fighting Chronic Pain, Chronic Fatigue and Insomnia is available for preorder on Amazon now! It’s release date is 29 January 2018.

Melissa vs Fibromyalgia book cover

This is what I wish the doctor had pressed into my hands when I was given, at last, a reason (or as close as I can get) for the pain, fatigue and insomnia I had been fighting for nearly 10 years already.

Who wouldn’t want a road map that lays out the specific steps to take to reduce pain, increase energy and generally limit the misery of not knowing?

I can’t provide a finely detailed road map tailored to you, but I have done the next best thing – I wrote up my experience combined with the research.

What’s in it?

I share the key things that help me and what the research says about these things so that you have somewhere to start. I have gone through many books, articles and pieces of research. I’ve done numerous experiments on myself – from figuring out my ideal walk length to trying low dose naltrexone

Nothing I’ve tried has severe side effects. I do share my experience with amitriptyline, an older tricyclic antidepressant that can help with sedation (to fall asleep), pain and headaches. This has several potential side effects, mostly mitigated for me by the low dosage, that means the cost/benefit ratio doesn’t work for many. The chances of it working, of the effects not wearing off and potential side effects make it a tricky option. I’ve always said I am lucky that the locum GP – who I saw once, saw my history of insomnia and put me on it – gave it to me prior to my being able to research, because I’d probably not have tried it.

Other than the low dose naltrexone and amitriptyline, the things I do are generally low in the side effect profile and self-controlled.

Self-efficacy is vital in managing this illness. Every day we have to do the work. We can’t hand this off and expect to be well.

Free Bonus

As a special free bonus for those who purchase my book before 11 February 2018, you will get FREE access to my new eCourse You vs Fibromyalgia: Arm Yourself with Knowledge. This has five lessons and goes through what Fibromyalgia is, my six tips, the quick list of the nine things that work for me, why I consider sleep as king and a sneak peak at pregnancy, nursing and parenting with Fibromyalgia (this is the subject of it’s own full eCourse).

How to access it

Email hello @ melissavsfibromyalgia . com with the proof of purchase (a screenshot of of your Amazon orders page with Melissa vs Fibromyalgia: My Journey Fighting Chronic Pain, Chronic Fatigue and Insomnia in there) and I will respond with the password and link to the course. The course will be released the day the book is.

Are you ready to get started on the next phase of your fight against fibromyalgia?